The Go Big Read selection from 2011-12, The Immortal Life of Henrietta Lacks, by Rebecca Skloot, has continued to generate a lot of discussion across campus. So today’s announcement from the National Institutes of Health is big news:
The understanding reached with the Lacks family respects their wishes to enable scientific progress while ensuring public acknowledgement of the enormous contribution made by the late Henrietta Lacks. In addition, the understanding gives the Lacks family a seat at the table in reviewing applications for controlled access to Henrietta Lacks’ whole genome data. (NIH Press Release, August 7, 2013)
Analysis of the agreement has already appeared prominently in both The Chronicle of Higher Education and The New York Times. Looks like it’s getting a lot of discussion in both locations, as well as from experts at UW. So great to know that a Go Big Read book has garnered such sustained interest.
Sarah McDaniel, Go Big Read
As you plan your next two weeks on the west side of campus, please keep in mind that the popular “Informing Consent: Unwitting Subjects in Medicine’s Pursuit of Beneficial Knowledge,” closes on March 31st. Numerous classes, community members, students, faculty and staff have learned from seeing many of the themes in Skloot’s book “brought to life,” through photographs, newspaper clippings, magazines and medical journals.
Rebecca Skloot has had a remarkable year, and “The Immortal Life of Henrietta Lacks” continues to be discussed in UW-Madison classes, local book clubs, and other Madison school and college programs. Students and faculty continue to visit the “Informing Consent” historical exhibit at the Ebling Library (open until March 31st) on the west side of campus. UW’s Go Big Read choice is but one of many highlights of Skloot’s literary trajectory- the Wellcome Trust Book Prize recently chose “Immortal Life” as the book that most celebrated medicine for 2010.
The Ebling Library for the Health Sciences on UW’s West Campus recently opened an exhibit entitled “Informing Consent: Unwitting Subjects in Medicine’s Pursuit of Beneficial Knowledge” in conjunction with “The Immortal Life of Henrietta Lacks.”
Artifacts, books, journals, photographs and magazines from Ebling and five other campus collection create narratives in cases entitled, Honoring Henrietta, The Science of HeLa, UW Cancer Research (McCardle), Patenting Life, Immortal Skin (the story of UW’s Dr. Allen-Hoffman), HeLa in the Press, The Art of Healing, Human Subject Experimentation in our Own Backyard, Informing Consent, and Captive Subjects-Is There Such a Thing as Voluntary?
Students, faculty, historians and family were heard to exclaim, “Great information- way to put the Skloot book in perspective, “Impressive amount of thoughtful work,” “Thanks so much for helping me to better understand [these subjects].”
The exhibit in the 3rd floor Historical Reading Room, is open the hours the same hours as those of Ebling until March 31, 2011. Curators, Micaela Sullivan-Fowler and History of Science Graduate Student, Lynnette Regouby are available to give tours for classes, book clubs, etc. firstname.lastname@example.org
And finally, this site may be of interest.
Photos by Micaela Sullivan-Fowler
According to Popular Science, Feb. 1, 2010, 276(2), p. 81. This is the sort of summary that the public is reading on “The Immortal Life of Henrietta Lacks.” Each item has a number of talking points in terms of HeLa cells and their role in scientific research. And as readers of the book know, the people involved in the research, and the Lacks family play as important a role in the trajectory of the story as the cells themselves.
If on campus, this takes you to the FindIt where you can get the half page of full text.
On Wednesday, June 2nd, Kathleen Dunn will be interviewing Rebecca Skloot, author of “The Immortal Life of Henrietta Lacks.” Skloot was also interviewed earlier this year, on Michael Feldman’s Whad’Ya Know? (March 13, 2010). Skloot and Dunn will be on a little after 10:00 am. Listen in on what promises to be a lively conversation…